We are at an exciting time for PSC and, to advance our research, are looking for patients to get involved. Funding from the National Institute of Health Research’s Rare Diseases TRC programme has enabled us to widen our research into the causes of PSC.

If the study is successful, we will be closer to achieving our ultimate goal of developing effective treatments for this chronic disease. For this we need all patients who have PSC to participate.

Taking part in the study involves:

  • Donating two blood samples, which can be taken at your next hospital appointment for your PSC or at your GP’s surgery. One sample is for DNA extraction and one is to measure markers in the blood associated with PSC.
  • Completing a participant questionnaire about your PSC and your health in general
  • Completing a pruritus questionnaire about your experience of itching symptoms

For more information or to request a study pack, please contact the study team at ukpsc@uhb.nhs.uk (Tel: 0121 371 8101).

Useful Links: